WHO GETS MND?
MND usually strikes in late middle age (the late
50s is average) or later, although there has been an increasing number of
cases of MND in young adults, as well as in very elderly people. Men
are somewhat more likely to develop MND than are women. Studies suggest an
overall ratio of about 1.2 men to every woman who develops the disorder.
For years, experts have tried to find factors
common to people who develop MND, such as environmental toxins, occupational
hazards, places of work or residence. So far, the evidence for such risk
factors and triggers has been unclear.
HOW IS MND DIAGNOSED?
MND usually announces itself with persistent
weakness or spasticity in an arm, hand or finger and sometimes in a leg,
foot or toe causing difficulty using the affected limb, or in the muscles
controlling speech or swallowing, leading to difficulty with these
functions. It isn't unusual for people to ignore such problems for some time
(perhaps months) at this stage or to consult a doctor who may be relatively
unconcerned. However, the disease doesn't stop there. It generally spreads
from one part of the body to another, almost always in parts adjacent to
each other, so that eventually the problem can no longer be ignored.
WHAT CAN BE DONE ABOUT MND?
Although MND research is proceeding at an
unprecedented pace, only one medication has been found to be somewhat
effective against the disease. That medication, riluzole (brand name Rilutek),
has a modest effect in prolonging survival.
other medications are now in clinical trials.
Until a definitive treatment or cure is found for
MND, clinics and centres use a team approach to patient care that mobilizes
a variety of health care professionals, all of whom aim to alleviate
symptoms, maintain function and independence, prolong life and offer
guidance for those with this disorder and their families.
For many people with MND, the loss of mobility and
strength is less distressing than the loss of the ability to speak. This may
occur as the muscles in the mouth and throat that control speech and the
muscles that help generate the pressure that moves air over the vocal cords
lose power over time.
A therapist can help the person with MND learn to
use an electronic device (there are a variety on the market) that can
substitute for speech.